Cane Coats: Fashionable Cane Attire!

Mission:
The LDN Surveys are not a scientific or controlled study, rather this is an attempt by patients to aggregate self-reported anecdotes  into a statistical  format that gives an overall snapshot of user experience. The reported low relapse 0.2 rate serves as an indication that Low Dose Naltrexone deserves research attention.

Author:
My name is SammyJo. I collected this survey data from other MS patients using LDN, to help raise interest in clinical trials. My success with LDN is being followed with interest by my neurologist at University of Texas Southwestern MS Center. If you have questions about my recovery on LDN, feel free to use the feedback form.

I've had MS for 10 years. February '04 I was at the end of my rope after years of injectable drugs, IV steroids, plus a year of chemo to quell my immune system. Nothing was working. I was barely walking with a cane, and just approved for a motorized wheelchair, when I found LDN through my own research. I started at 2.0 mg the first month, then 4.5 mg. The first night I knew something was happening because I slept w/o leg spasms for the first time in years. Six weeks later I put down the cane, by three months I could stay outside on hot summer days, and now I'm lifting weights to 100 lbs. I'm in the best shape of my life, and looking forward to travel & adventure with with my wonderful husband of 20 years.

This inexpensive medication (around $15/mo) has been amazing for myself and thousands of other people with MS. If you are a patient seeking an LDN prescription, take a copy of the survey results to your doctor. If you are a researcher, please help by starting clinical trials so we can learn why and how this medication works. 

Once I started to feel better on LDN, I was able to make progress on the big job of rebuilding atrophied muscles, and learning to walk again. Remember, even if you start to feel better from LDN, you still need exercise, healthy foods and anti-oxidants. See my MS Recovery suggestions. 

February 2005 Update: It's been one year on LDN. Steady recovery continues with no set backs.  I still do physical therapy twice a week. October '04 I had an MRI, and when compared to the last from May '03, there was no new activity.

June 2005 Update: Still doing great. Attended the LDN conference on June 11th, in NYC and spoke about my LDN experience and the user surveys. A 24 month full clinical trial is planned to launch in Italy for LDN & MS. Yeah! Now if some US researchers would please step forward... 

April 2007 Update: It has been three years since I started LDN, and I have made amazing progress on recovering from a debilitated state after 9 years of multiple sclerosis, thanks to LDN. And we achieved our goal to have a human trial for LDN and MS in the US, and an animal study is planned at Penn State.

Jan 2008 Update: Now at four years on LDN only, at a stable plateau. Could not overcome the last of my deficits in walking a distance, from the 9 years of accumulated MS scarring before LDN, but my symptoms are an annoyance, not the constant crisis I was in before LDN.

May 2008 Update: LDN continues to amaze me, I've had a great Spring, I switched to 3 mg instead of 4.5 in March which might be the better dose for my weight. Able to lift off that plateau, doing more physical therapy (yes, I was a slacker over the Winter), and out in the garden getting ready to set out a hundred seedlings. Finished the LDN book with Elaine Moore, and excitedly awaiting the results of LDN trials from UCSF, Italy and Penn State. 2008 is going to be an exciting year for LDN!

Aug 2004 - we had a great trip across the country & hiked Yellowstone - thanks to LDN!