| This is a survey 157 users of Low Dose Naltrexone (LDN) for MS, who have been on it for at least 3 months. The survey assesses disability, using the Kurtzke Expanded Disability Status Scale (EDSS). The rating is from self assessment or a doctor. | |
| This is a preliminary presentation of results. Further information collected such as length of diagnosis and duration of LDN treatment will be analyzed and presented shortly. |
| What is your gender? | |
| Female |  94 (60.26%)
|
| Male | 62 (39.74%)
|
| What mg dose are you taking? | |
| Less than 2.0 mg | 1 (0.64%)
|
| 2.0 - 2.9 mg | 5 (3.21%)
|
| 3.0 - 4.4 mg | 52 (33.33%)
|
| 4.5 mg | 84 (53.85%)
|
| More than 4.5 mg | 8 (5.13%)
|
| Variable dose pattern | 6 (3.85%)
|
| Disease progression since starting LDN? | |
| Too soon to tell | 34 (21.79%)
|
| Better than before LDN | 59 (37.82%)
|
| Progression has stopped | 55 (35.26%)
|
| Progression has worsened | 8 (5.13%)
|
| How many relapses since starting LDN? | |
| 0 | 135 (86.54%)
|
| 1 | 16 (10.26%)
|
| 2 | 3 (1.92%)
|
| 3 | 1 (0.64%)
|
| 4 or more | 1 (0.64%)
|
| EDSS Score | Before LDN | After LDN |
| 0.0 | 4 (2.56%)
|
9 (5.77%)
|
| 1.0 | 9 (5.77%)
|
20 (12.82%)
|
| 1.5 | 17 (10.90%)
|
15 (9.62%)
|
| 2.0 | 11 (7.05%)
|
15 (9.62%)
|
| 2.5 | 9 (5.77%)
|
11 (7.05%)
|
| 3.0 | 7 (4.49%)
|
7 (4.49%)
|
| 3.5 | 5 (3.21%)
|
12 (7.69%)
|
| 4.0 | 8 (5.13%)
|
3 (1.92%)
|
| 4.5 | 2 (1.28%)
|
1 (0.64%)
|
| 5.0 | 1 (0.64%)
|
7 (4.49%)
|
| 5.5 | 10 (6.41%)
|
8 (5.13%)
|
| 6.0 | 13 (8.33%)
|
8 (5.13%)
|
| 6.5 | 28 (17.95%)
|
5 (3.21%)
|
| 7.0 | 4 (2.56%)
|
3 (1.92%)
|
| 7.5 | 8 (5.13%)
|
3 (1.92%)
|
| 8.0 | 2 (1.28%)
|
2 (1.28%)
|
| 8.5 | 0 (0.00%)
|
1 (0.64%)
|
| 9.0 | 1 (0.64%)
|
1 (0.64%)
|
| 9.5 | 0 (0.00%) | 0 (0.00%) |
| Average | 7.3 | 5.9 |
| Don't Know | 17 (10.90%)
|
17 (10.90%)
|
| The change in average EDSS is the difference between using a wheelchair and walking with a cane. Details on EDSS definitions. |
| MS diagnosis when you started LDN? | |
| Relapsing Remitting | 80 (51.28%)
|
| Secondary Progressive | 43 (27.56%)
|
| Progressive | 17 (10.90%)
|
| Don't know | 16 (10.26%)
|
| MS diagnosis as of today? | |
| Relapsing Remitting | 70 (44.87%)
|
| Secondary Progressive | 38 (24.36%)
|
| Progressive | 16 (10.26%)
|
| Don't know | 32 (20.51%)
|